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Dos and don’ts for patients who consult Dr. Google

Nathan E Botts / Monday, October 30, 2017

/ Categories: Personal Health Information, Mobile Health & Health Apps

Dos and don’ts for patients who consult Dr. Google

A Blog Post from Kevin Pho M.D.

A quote from Dr. Kevin Pho's article: "It is counter-productive when you insist to me that your treatment must follow what you found on the internet. Remember that whoever wrote the articles is usually writing generally. They do not know details of your diagnosis, your medical conditions, exact health situations and such.

The people on the chat forums are usually outliers who either had a particularly great experience or a rough time. You don’t hear from the majority of individuals who had an unremarkable course and don’t waste time writing about it. You may not know that your research is outdated, thanks to new material presented at a conference three months ago. You may not know that, although a treatment is FDA approved, I have personally seen patients identical to you and have a lot of side effects with it.

You may not know of ethnic and geographic differences in response to treatment. Perhaps, a treatment commonly used in Japan may not be as popular in the U.S. because there were negative clinical trials in the past. Considering such examples, it is best to present your research for a discussion rather than dictating what you think it ought to be."

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Tags: evidence base health education personal health information engagement consumer health information Patient Generated Health Data PGHD personal health research diagnosis

How to Protect Your Privacy as More Apps Harvest Your Data

A New York Times Personal Tech series article by Brian X. Chen

Retrieved By Health eConsultation / Wednesday, May 31, 2017 0 15574 Article rating: 5.0

In this article written by Brian X. Chen from the New York Times he discusses some of the potential ways in which mobile apps that you download to your phone may be collecting and using your personal data in ways you did not know.

One of the key takeaways is that there are ways in which to protect yourself and tools that can help you figure out which apps are collecting your data and how to remove their ability to do so.

Stay Private: How to Hide Your Webcam, Mute Your Mic, and Turn Off Notifications

An article from Zapier

Nathan E Botts / Wednesday, August 2, 2017 0 15502 Article rating: 5.0

One consideration as you gather and store more personal health information on your computer and devices is making sure that you are not inadvertently sharing this information (or some other aspect of your personal health) through your webcam or mic.

This article from Zapier outlines several different ways and some handy applications that can help you control this on your PC or MAC.

Determining the Value of Compromising Your Privacy

An article from Engadget

Nathan E Botts / Sunday, August 13, 2017 0 10495 Article rating: No rating

This article from the Engadget web magazine discusses how your online searching behaviors might be monitored by different companies that you are unaware about. This data is likely used to build profiles that may impact the advertisements you see, credit ratings received, and other potential social network aspects as of yet identified.

Sharing Your Electronic Health Record (EHR)

A Video from the NIH All of Us Research Program Channel

Nathan E Botts / Friday, October 27, 2017 0 12251 Article rating: 5.0

From the NIH YouTube Channel: Do you know what information is contained in your electronic health record (EHR)? Eric Dishman, director of the All of Us Research Program, explains what’s in your EHR and why the data is so valuable for researchers.

Sharing Sensitive Health Information: Protect Your Privacy and Improve Your Health

A guide from the Office of the National Coordinator for Health Information Technology

Nathan E Botts / Saturday, March 31, 2018 0 54082 Article rating: 5.0

This 2-page ONC published graphic novel (aka comic book) is a short guide that helps illustrate why protecting your health privacy is important and issues to consider when sharing sensitive health information.

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What is Health eDefense?

Health eDefense is the act of protecting your personal health information. This not only protects your privacy, security, and safety, but also protects the data of your family, friends, and others in your community.

The Health eDefense platform is dedicated to providing consumers with actionable information on how to protect their personal health information effectively from cyber threats. Health eDefense provides informational content and education related to cyber security, privacy and consent, security, and related topics and policies such as HIPAA and GDPR.

Cyber security is impacting our daily lives, and our personal and protected health information is a target for hackers and criminals looking to make money off of our personal data. Your personal health data will always be about your health, demographics, social, lifestyle, financial history, and other related details. Once taken, they cannot be taken back.

We think the best cybersecurity tool is education and awareness, and we hope to provide users with tools and insight to protect themselves and their data better.