How do you control where your DNA data resides and how it is shared online?

How do you control where your DNA data resides and how it is shared online?

An assessment of the article from Bloomberg

Subjective:

It is the assessment from this article that at this time it is very difficult to understand and control who has access to your genetic data. There are not enough privacy protections in relation to what companies who analyze your genetic data are then able to do with that data after they have gathered it.

Objective: 

Currently the primary legislation that helps to protect consumer's privacy in relation to their genetic data is called the Genetic Information Nondiscrimination Act.

Assessment:

One of the key concerns for consumers is whether insurance companies and related payers might potentially get access to that information and be able to increase premiums based on possible risk factors identified within someone's genetic code. 

This article at Kaiser Health News seems to indicate that there are some real concerns that we should be aware of: "In general, long-term-care insurers can indeed use genetic test results when they decide whether to offer you coverage. The federal Genetic Information Nondiscrimination Act prohibits health insurers from asking for or using your genetic information to make decisions about whether to sell you health insurance or how much to charge. But those rules don’t apply to long-term-care, life or disability insurance.

When you apply for long-term-care insurance, the insurer may review your medical records and ask you questions about your health history and that of your family. It’s all part of the underwriting process to determine whether to offer you a policy and how much to charge."

Plan:

Before participating in Direct to Consumer Genetic Testing be sure to read that company's policies about who they might potentially share that data with beyond you.

Examples of these types of companies include:

  • 23andMe
  • Counsyl
  • Gene by Gene
  • Laboratory Corporation of America
  • MyMedLab
  • Mapmygenome India
  • Positive Bioscience
  • Quest Diagnostics, Inc

 

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How to Protect Your Privacy as More Apps Harvest Your Data

A New York Times Personal Tech series article by Brian X. Chen

Retrieved By Health eConsultation 0 15344 Article rating: 5.0

In this article written by Brian X. Chen from the New York Times he discusses some of the potential ways in which mobile apps that you download to your phone may be collecting and using your personal data in ways you did not know.

One of the key takeaways is that there are ways in which to protect yourself and tools that can help you figure out which apps are collecting your data and how to remove their ability to do so.

Stay Private: How to Hide Your Webcam, Mute Your Mic, and Turn Off Notifications

An article from Zapier

Nathan E Botts 0 15305 Article rating: 5.0

One consideration as you gather and store more personal health information on your computer and devices is making sure that you are not inadvertently sharing this information (or some other aspect of your personal health) through your webcam or mic.

This article from Zapier outlines several different ways and some handy applications that can help you control this on your PC or MAC.

Determining the Value of Compromising Your Privacy

An article from Engadget

Nathan E Botts 0 10327 Article rating: No rating

This article from the Engadget web magazine discusses how your online searching behaviors might be monitored by different companies that you are unaware about. This data is likely used to build profiles that may impact the advertisements you see, credit ratings received, and other potential social network aspects as of yet identified. 

Cybersecurity: Crash Course Computer Science #31

Retrieved By Health eConsultation 0 15027 Article rating: No rating

Cybersecurity: Crash Course Computer Science #31Cybersecurity is a set of techniques to protect the secrecy, integrity, and availability of computer systems and data against threats. In today’s episode, we’re going to unpack these three goals and talk through some strategies we use like passwords, biometrics, and access privileges to keep our information as secure, but also as accessible as possible. From massive Denial of Service, or DDos attacks, to malware and brute force password cracking there are a lot of ways for hackers to gain access to your data, so we’ll also discuss some strategies like creating strong passwords, and using 2-factor authentication, to keep your information safe. Check out Computerphile’s wonderful video on how to choose a password! https://www.youtube.com/watch?v=3NjQ9b3pgIg Pre-order our limited edition Crash Course: Computer Science Floppy Disk Coasters here! https://store.dftba.com/products/computer-science-coasters Produced in collaboration with PBS Digital Studios: http://youtube.com/pbsdigitalstudios Want to know more about Carrie Anne? https://about.me/carrieannephilbin The Latest from PBS Digital Studios: https://www.youtube.com/playlist?list=PL1mtdjDVOoOqJzeaJAV15Tq0tZ1vKj7ZV Want to find Crash Course elsewhere on the internet? Facebook - https://www.facebook.com/YouTubeCrash... Twitter - http://www.twitter.com/TheCrashCourse Tumblr - http://thecrashcourse.tumblr.com Support Crash Course on Patreon: http://patreon.com/crashcourse CC Kids: http://www.youtube.com/crashcoursekids

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What is Health eDefense?

Health eDefense is the act of protecting your personal health information. This not only protects your privacy, security, and safety, but also protects the data of your family, friends, and others in your community.

The Health eDefense platform is dedicated to providing consumers with actionable information on how to protect their personal health information effectively from cyber threats. Health eDefense provides informational content and education related to cyber security, privacy and consent, security, and related topics and policies such as HIPAA and GDPR.

Cyber security is impacting our daily lives, and our personal and protected health information is a target for hackers and criminals looking to make money off of our personal data. Your personal health data will always be about your health, demographics, social, lifestyle, financial history, and other related details. Once taken, they cannot be taken back.

We think the best cybersecurity tool is education and awareness, and we hope to provide users with tools and insight to protect themselves and their data better.