Why you should care about controlling your personal health data
Nathan E Botts
/ Categories: Privacy, Security

Why you should care about controlling your personal health data

Learning to balance privacy with care continuity and participation

The crux of a major issue in healthcare is the balancing act between the need to exchange patient data for advancing medical research and developing more effective drugs and AI tools, and upholding strict privacy rights and data protection standards. A promising solution to this conundrum is emerging in the form of a new wave of businesses that are developing a revamped data economy.

These businesses are diverse in their operations and methodologies, employing a range of technologies and strategies, and catering to various demographics. They are driven by different motivations and personal convictions. However, they are united in their belief that the current system of health data exchange, which often involves the selling and buying of personal health information without explicit patient consent or knowledge, is fundamentally flawed.

These pioneering businesses are striving to build a system that facilitates the sharing of individual health data while concurrently adhering to stringent privacy standards. This innovative approach could potentially revolutionize the healthcare industry by enabling meaningful, consent-based data exchange, thereby fueling advancements in drug development and AI tools, while also respecting and prioritizing patients' rights to privacy.

In today's digital age, controlling your personal health data has become more important than ever before. With the increasing amount of data breaches and cyber-attacks, it is important to understand the significance of safeguarding your personal health information. There are several reasons why you should care about controlling your personal health data.

Firstly, it is important to maintain the privacy of your health information. Your medical records contain sensitive and personal information, including medical history, prescriptions, and test results. Unauthorized access to this information can lead to identity theft, insurance fraud, and discrimination. Secondly, controlling your personal health data can also help you make informed decisions about your health. By having access to your health data, you can keep track of your medical history, stay informed about your medications, and monitor your progress toward achieving your health goals. This information can also be shared with your healthcare provider, helping them provide better care and treatment options. Thirdly, controlling your personal health data can also contribute to medical research and advancements.

When sharing your health data with researchers, you can help them develop new treatments and cures for various medical conditions. However, it is important to ensure that your personal information is protected and anonymized to prevent any potential harm. Lastly, controlling your personal health data can also help you save money on healthcare expenses. Access to your health information allows you to track your medical expenses, identify any inconsistencies, and dispute any errors. This can help you avoid unnecessary expenses and save money on healthcare costs in the long run. In conclusion, controlling your personal health data is essential for maintaining privacy, making informed decisions about your health, contributing to medical research, and saving money on healthcare expenses.

It is important to take the necessary steps to safeguard your personal health information and ensure it is used appropriately and responsibly. By doing so, you can take control of your health and well-being in the digital age.

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How to Protect Your Privacy as More Apps Harvest Your Data

A New York Times Personal Tech series article by Brian X. Chen

Retrieved By Health eConsultation 0 15090 Article rating: 5.0

In this article written by Brian X. Chen from the New York Times he discusses some of the potential ways in which mobile apps that you download to your phone may be collecting and using your personal data in ways you did not know.

One of the key takeaways is that there are ways in which to protect yourself and tools that can help you figure out which apps are collecting your data and how to remove their ability to do so.

Stay Private: How to Hide Your Webcam, Mute Your Mic, and Turn Off Notifications

An article from Zapier

Nathan E Botts 0 15071 Article rating: 5.0

One consideration as you gather and store more personal health information on your computer and devices is making sure that you are not inadvertently sharing this information (or some other aspect of your personal health) through your webcam or mic.

This article from Zapier outlines several different ways and some handy applications that can help you control this on your PC or MAC.

Determining the Value of Compromising Your Privacy

An article from Engadget

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This article from the Engadget web magazine discusses how your online searching behaviors might be monitored by different companies that you are unaware about. This data is likely used to build profiles that may impact the advertisements you see, credit ratings received, and other potential social network aspects as of yet identified. 

Cybersecurity: Crash Course Computer Science #31

Retrieved By Health eConsultation 0 14751 Article rating: No rating

Cybersecurity: Crash Course Computer Science #31Cybersecurity is a set of techniques to protect the secrecy, integrity, and availability of computer systems and data against threats. In today’s episode, we’re going to unpack these three goals and talk through some strategies we use like passwords, biometrics, and access privileges to keep our information as secure, but also as accessible as possible. From massive Denial of Service, or DDos attacks, to malware and brute force password cracking there are a lot of ways for hackers to gain access to your data, so we’ll also discuss some strategies like creating strong passwords, and using 2-factor authentication, to keep your information safe. Check out Computerphile’s wonderful video on how to choose a password! https://www.youtube.com/watch?v=3NjQ9b3pgIg Pre-order our limited edition Crash Course: Computer Science Floppy Disk Coasters here! https://store.dftba.com/products/computer-science-coasters Produced in collaboration with PBS Digital Studios: http://youtube.com/pbsdigitalstudios Want to know more about Carrie Anne? https://about.me/carrieannephilbin The Latest from PBS Digital Studios: https://www.youtube.com/playlist?list=PL1mtdjDVOoOqJzeaJAV15Tq0tZ1vKj7ZV Want to find Crash Course elsewhere on the internet? Facebook - https://www.facebook.com/YouTubeCrash... Twitter - http://www.twitter.com/TheCrashCourse Tumblr - http://thecrashcourse.tumblr.com Support Crash Course on Patreon: http://patreon.com/crashcourse CC Kids: http://www.youtube.com/crashcoursekids


What is Health eDefense?

Health eDefense is the act of protecting your personal health information. This not only protects your privacy, security, and safety, but also protects the data of your family, friends, and others in your community.

The Health eDefense platform is dedicated to providing consumers with actionable information on how to protect their personal health information effectively from cyber threats. Health eDefense provides informational content and education related to cyber security, privacy and consent, security, and related topics and policies such as HIPAA and GDPR.

Cyber security is impacting our daily lives, and our personal and protected health information is a target for hackers and criminals looking to make money off of our personal data. Your personal health data will always be about your health, demographics, social, lifestyle, financial history, and other related details. Once taken, they cannot be taken back.

We think the best cybersecurity tool is education and awareness, and we hope to provide users with tools and insight to protect themselves and their data better.