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Nathan E Botts / Sunday, April 17, 2016

/ Categories: Genetics

Genetics Home Reference

Your Guide to Understanding Genetic Conditions

From the Genetics Home Reference resource website:

What information is in Genetics Home Reference?

Genetic Condition Summaries - Each summary describes the major features of a particular health condition, provides information about the condition's genetic basis, and explains its pattern of inheritance. The summaries also link to support organizations and additional information about the condition.
Gene Summaries - Each summary provides the official name and symbol of a gene, its chromosomal location, an explanation of its normal function, and the health implications of variations in the gene. Each gene summary links to more detailed information about the gene.
Chromosome Summaries and mitochondrial DNA (mtDNA) - Chromosome summaries provide an estimate of the amount of DNA and number of genes for each chromosome. Each summary also provides information on how changes in the number or structure of the chromosome can lead to certain disorders. A separate summary describes mtDNA and its associated health conditions.
Help Me Understand Genetics - This primer on human genetics provides an illustrated, basic explanation of how genes work and how mutations cause disorders. It also includes information about genetic inheritance, gene families, the genetics of normal human traits, genetic testing (including newborn screening), gene therapy, genomics research, and precision medicine.

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Tags: genetics U.S. National Library of Medicine U.S. Department of Health and Human Services genes

How to Protect Your Privacy as More Apps Harvest Your Data

A New York Times Personal Tech series article by Brian X. Chen

Retrieved By Health eConsultation / Wednesday, May 31, 2017 0 15600 Article rating: 5.0

In this article written by Brian X. Chen from the New York Times he discusses some of the potential ways in which mobile apps that you download to your phone may be collecting and using your personal data in ways you did not know.

One of the key takeaways is that there are ways in which to protect yourself and tools that can help you figure out which apps are collecting your data and how to remove their ability to do so.

Stay Private: How to Hide Your Webcam, Mute Your Mic, and Turn Off Notifications

An article from Zapier

Nathan E Botts / Wednesday, August 2, 2017 0 15527 Article rating: 5.0

One consideration as you gather and store more personal health information on your computer and devices is making sure that you are not inadvertently sharing this information (or some other aspect of your personal health) through your webcam or mic.

This article from Zapier outlines several different ways and some handy applications that can help you control this on your PC or MAC.

Determining the Value of Compromising Your Privacy

An article from Engadget

Nathan E Botts / Sunday, August 13, 2017 0 10518 Article rating: No rating

This article from the Engadget web magazine discusses how your online searching behaviors might be monitored by different companies that you are unaware about. This data is likely used to build profiles that may impact the advertisements you see, credit ratings received, and other potential social network aspects as of yet identified.

Sharing Your Electronic Health Record (EHR)

A Video from the NIH All of Us Research Program Channel

Nathan E Botts / Friday, October 27, 2017 0 12264 Article rating: 5.0

From the NIH YouTube Channel: Do you know what information is contained in your electronic health record (EHR)? Eric Dishman, director of the All of Us Research Program, explains what’s in your EHR and why the data is so valuable for researchers.

Sharing Sensitive Health Information: Protect Your Privacy and Improve Your Health

A guide from the Office of the National Coordinator for Health Information Technology

Nathan E Botts / Saturday, March 31, 2018 0 54103 Article rating: 5.0

This 2-page ONC published graphic novel (aka comic book) is a short guide that helps illustrate why protecting your health privacy is important and issues to consider when sharing sensitive health information.

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What is Health eDefense?

Health eDefense is the act of protecting your personal health information. This not only protects your privacy, security, and safety, but also protects the data of your family, friends, and others in your community.

The Health eDefense platform is dedicated to providing consumers with actionable information on how to protect their personal health information effectively from cyber threats. Health eDefense provides informational content and education related to cyber security, privacy and consent, security, and related topics and policies such as HIPAA and GDPR.

Cyber security is impacting our daily lives, and our personal and protected health information is a target for hackers and criminals looking to make money off of our personal data. Your personal health data will always be about your health, demographics, social, lifestyle, financial history, and other related details. Once taken, they cannot be taken back.

We think the best cybersecurity tool is education and awareness, and we hope to provide users with tools and insight to protect themselves and their data better.